Lupus Awareness Month: My Life with Lupus

This month is Lupus Awareness month which, as the Lupus foundation of America puts it, is meant to “increase public understanding of this cruel and mysterious disease that ravages different part of the body.”  It’s a noble cause, but it will always come up short when trying to explain what it means to live with the disease.  Even those of us with a Lupus diagnosis can’t have a complete grasp of what the disease means for someone else because it’s as individual as it is cruel. However different our experiences with the disease are, I imagine we all share that invisible line –the line that separates our lives before the diagnosis and our new life after we discover what has been wreaking havoc. For me, that line was formed after what felt like

For me, that line was formed after what felt like millionth visit to a specialist when I was told that it was Lupus. This was the reason my body was attacking itself. This was the reason I was sick all the time. This was the reason I slept for hours on the weekend and felt like I was walking through a fog. My world quickly became about finding the right drugs, many prescriptions of prednisone, supplements that caused flairs, and a general disdain for all “magic bullets” that everyone felt so compelled to share with me. Plaquinel caused unbelievable itching, but low-dose naltrexone worked despite the month or two of super weird dreams. Things were manageable.

But I knew I needed to do more. Having just worked with my health coach on thyroid disease, I had learned that food was medicine, that health was far more than just food and exercise, and that a solution was out there. I just had to honor my intuition and find it.

Today I’m in remission, but I would be lying if I said that Lupus didn’t still play a major role in my life. It is, in many ways, my main motivator. It keeps me listening to my body and eating and living in a way that supports my health.  It’s also the reason I do what I do — why I gave up a career I worked so hard for to become a practitioner in the little know field of health coaching.

While I shy away from completely calling this diagnosis a blessing, I do know that it has molded my life into something I would have never imagined. And for that, I’m pretty grateful.

I would love to hear your story. Let me know what that line was like for you in the comments below.

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cholleyhurt

My passion is to help you stop feeling held back by your body and start enjoying your life, your body, and your awesomeness. I know what it’s like to live without energy, to feel that your body is working against you, and to worry what your future will look like if you feel this bad now. I did not want to be a forty-year-old in the body of an eighty-year-old, but really who does? I’ve been there, and I never want to feel that way again. And I don’t want you to feel that way either. As a holistic health coach, I help you look past the fog of poor health to identify clear and concise goals and equip you with the tools to meet them. This isn’t a plan so you can quickly lose weight and this isn’t a gimmicky program to give you a quick shot of energy. This is a transformative process that will restore the lost connection between you and your body so that you can set off for a lifetime of health. Interested? Contact me today for a free consultation and follow me on Facebook

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